Operation Santa Claus. Hong Kong charity helps SMA patients manage day to day.
The Star, Malaysia
15th November 2024
Operation Santa Claus. Hong Kong charity helps SMA patients manage day to day.
Eight-year-old Cheuk Ka’s world is a studio flat in Hong Kong that she shares with her mother, younger sister and the family’s domestic helper.
Born with spinal muscular atrophy (SMA), a genetic neuromuscular disorder that causes muscle weakness and loss of movement, she has been bedridden her whole life and breathes using a ventilator.
While she cannot go outside to play or attend school, the Families of SMA Foundation has worked to relieve her hardship and that of many other patients.
The NGO, which was established in 1998, provides life-saving medical equipment to families that struggle to afford such devices.
They also provide free home visits by intensive care unit (ICU) nurses, physiotherapists and other specialists to check on patients and train families to properly use mechanical ventilators, mucus suction machines and other respiratory equipment.
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