How two sessions serve as bridge between people and government, help authorities formulate policies

Global Times

3rd March 2024

How two sessions serve as bridge between people and government, help authorities formulate policies

Pathways to progress

By Leng Shumei and Hu Yuwei

February 29 marks the 17th International Rare Disease Day. 

The World Health Organization defines diseases with a prevalence of 0.065 percent to 0.1 percent of the total population as rare diseases. 

As of the end of September 2023, around 780,000 cases of rare disease had been registered in China since the inception of a rare disease diagnosis and treatment service information system in 2019, according to the China Global Television Network.

To improve the diagnosis and treatment level of rare diseases and safeguard the health rights and interests of rare disease patients in the country, the Chinese National Health Commission, together with other four Chinese government departments, released the first catalog of rare diseases in 2018. Various localities in the country are implementing policies on medication, health insurance and research according to the catalog.

https://www.globaltimes.cn/page/202403/1308075.shtml