Fashion show spotlights rare disease community
Xinhua
13th March 2026
Fashion show spotlights rare disease community
A charity fashion show was held in Yantai, Shandong province, on Saturday to mark International Rare Disease Day and launch a new support network for affected families. The event brought together nearly 300 patients with rare diseases, medical experts, business representatives and volunteers.
Through diverse and creative formats such as a fashion show, patient talk shows, a photography exhibition showcasing patients' lives, seminars, and hospital's free clinics, the event sought to break down public barriers to understanding rare diseases. It created a space of empathy, respect, and support for the rare disease community in Yantai and beyond.
Rare diseases, often genetic or immune-related, affect a small percentage of the population. With nearly 10,000 types identified worldwide, they pose significant challenges, including delayed diagnosis, high treatment costs, and social isolation. The World Health Organization recognizes the prevention and control of rare diseases as a global health priority.
Comments