Eight Years of Rare Disease Care. Collaborative Efforts to Safeguard and Sustain Compassionate Care

Health Promotion Administration, Taiwan

8th January 2026

Eight Years of Rare Disease Care. Collaborative Efforts to Safeguard and Sustain Compassionate Care

Since 2017, the Health Promotion Administration (HPA) has implemented the "Rare Disease Care Program," integrating multidisciplinary care teams to extend services from clinical settings into patients' daily lives while linking families to long-term care and social welfare resources. The program currently serves over 8,500 rare disease families, effectively alleviating their physical, psychological, and financial burdens.

Recognizing that rare disease care is a long-term endeavor, the Eight Years of Rare Disease Care. Collaborative Efforts to Safeguard and Sustain Compassionate Care.

Rare Disease Care Achievement Conference Demonstrates Commitment to Multidisciplinary Care

To ensure that rare disease patients and their families receive comprehensive medical care and social support, the HPA has implemented the "Rare Disease Care Program" for eight consecutive years. On November 25, the HPA convened the "Rare Disease Care Achievement Conference" under the theme "Collaborative Efforts to Safeguard Rare Lives, United in Sustaining Compassionate Care."

https://www.hpa.gov.tw/EngPages/Detail.aspx?nodeid=1052&pid=19755